Charity Tourettes Action has discovered that patients are facing long delays in diagnosis.
His parents, who lost their first son in 2013, say Carter Cookson has "gained his angel wings".
Max Fisher, 23, gets red, itchy welts and swelling when in contact with anything cold.
An investigation is under way after patients contracted a fungal infection associated with pigeon droppings.
Kris Hallenga was diagnosed with terminal cancer, but beat the odds. Her scar is part of her body art.